Sitemap - 2024 - Rare Disease Girl
Another year of survival - birthday reflections
Food and Freedom - the hospital journey continues
And Healing Begins Again - My Hospital Journey Continues
The Emergency Surgery - Lessons in the Unexpected - Part 3
It's an Emergency! Lessons in the Unexpected - Part 2
When your worst photo is all over the internet
Taylor is back in the newsfeed with more tips for hospital stays & life as a patient
Weird week ahead. Relax your jaw.
When A Liar Steals Your Dreams
A Self-Care Tip Everyone Can Use
When your toddler helps with your infusions
A surprising link between surgery + depression + cognitive decline
A digital mini-meditation break
When Your Life Story Is A Little Too Exciting For Doctors
Today, you are my advocates: aHUS Awareness Day 2024!
"I want pasta and fireworks and a dog!"
When Your Disease Has a "Bad" Name, Should Patients & Caregivers Be Part of the Discourse?
Should I tell my employer? The risks of medical disclosure.
Caregiving is hot - Taylor's latest pod appearance
The History of aHUS - a mini-report on my disease
The Butterfly Effect - In a Time of Chaos, Spreading Love Matters
Donating Blood Can Help Save Lives, Including Your Own
Taylor Health Update - When No News is Good News
For your summer road-trip listening pleasure
Thanks AGAIN, HuffPost! Another Lovely Feature
What My Near Death Experience Taught Me About Love
Encore: How to choose a movie when you might die before the end...?
Parenthood for Zach Started in a Hospital Closet
How to Help Save Your Own Life
Year in Review: Life After My Lay-off
How to Support Someone with a Rare Disease
Writing an Apology Letter to My Butt
Welcoming Back My Butt: How Almost Dying Helped Me Love My Body
Motherhood - My Life's Most Epic Adventure
Reflecting on the AHUS Conference in Disney World
Cultivating Resilience + Sea Glass
How to Reduce Medical Procedure Anxiety
Infusion Interview: Zach + Taylor on the impact of their family art project
The Power of Chalk Butterflies 🦋
Taylor Health Update - A New Little Mystery
Hey Dr. Google - How to Avoid Misinformation
Why the Kate Middleton Conspiracy is Getting Extra Annoying
Feeling unsafe in your own body
Graduating from Dialysis Part 2
Graduating from Dialysis Part 1
Happy Anniversary Rare Disease Girl - A Valentine's Day Audio Story
Infusion Interview- Life Update with Zach and Taylor
Tips on how to be heard in a hospital
Number one trending article on Apple!?
When a Happy Day Turned Harrowing- Zach shares his story
How Do You Spell That? Rare Disease Podcast
In the Kingdom of the Ill - Part 2
In the Kingdom of the Ill - Part 1