Thanks AGAIN, HuffPost! Another Lovely Feature
A two-part video version of my viral article.
Hi gentle or not-so gentle Substack readers,
I’m so grateful HuffPost has been so supportive of me and my story. The team there made a two-part abridged video version of my article for socials.
First, here’s my viral Huffington Post piece if you haven’t already read it.
In less than 24 hours, it’s over 100k views on Instagram. I find it always vulnerable to share and I’m ever-nervous to read comment sections, but the response so far has been so moving.
Did you miss it?
If you’re new here and wondering, “what happened to this lady?” read:
I started writing this when I was on dialysis. It’s intended to be both memoir and a practical tool to help folks who might be going through something similar or those caregivers and family supporting someone with a challenging diagnosis. NOTE: This is not intended to replace actual medical guidance. Please consult your doctors on your individual challenges and situations. Please talk to your clinicians before adjusting any of your care protocols. Also names have been changed for most of my medical staff.
Thank you to CC Couchois, Roy Lenn, and Dr. Richard Burwick for your founding level donation.
Hi Taylor, Great videos and advice for any patient and caregiver. Keeping records of your symptoms and treatment etc is exactly what caregivers in USA and now UK are sharing with each other, templates and ideas to empower ourselves. You may be interested in the 'origin story' of Tiago Forte who wrote 'Building a second brain' https://fortelabs.com/blog/the-story-behind-basb/
There is a whole 'productivity' following behind his ideas now.
Like you, I'd love to see an integrated physician-patient-caregiver info-system, I keep updating my excel sheets on Mums med-history.
Having 6 copies ready in our go-bag for Dad saved time, and EVERY copy was used, because the I was asked by every physician / nurse for the same info, between A&E and admission to a bed.