Why subscribe?

Hi Reader,

I’m Taylor and I want to help you save your own life.

At some point in life, we are either the patient or the caregiver. It’s intrinsically part of the human story. And in those moments, I’m here for you.

Rare Disease Girl is a reader-supported digital atlas for navigating life’s inevitable challenges: personal memoir, health systems, mental wellness, patient-life, life-saving tips, and motherhood.

When you subscribe to RDG, you’ll find three major themes coming from my writing: topics relatable for everyone, personal memoir, and advocacy.

While my experience is rare, my messages are universal.

I went through an incredible ordeal and, spoiler alert, I’m still here. I hope the writings serve as a resource for you, providing practical tools, but also a window into these challenges from someone who has lived it… and is here to tell the tale. Perhaps between these words, you are seen.

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I also send subscriber-only exclusive update emails you don’t get on the site alone.

If you enjoy what you read here, your subscription means a lot to me. It’s my love language.

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You won’t have to worry about missing anything. Every new edition of the newsletter goes directly to your inbox.

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Your contribution helps me make time for research, writing, and posting. For my appreciation, I will send you exclusive paid subscriber-only posts as well as all the archives.

Paid subscribers also get access to more personal memoir.

You are the fuel that keeps me posting. Even on hard weeks.

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…and let me know a little about you and what resonates with you! Tell me where you’re reading from. xo