When a Happy Day Turned Harrowing- Zach shares his story

Taylor's husband shares their family's birth story and how it inspired a beautiful song

Hi Readers, In the article below, Zach recounts our journey two years ago and how it inspired his music. He’s beautiful with words.

When a Happy Day Turned Harrowing, Dustbowl Revival Songwriter Found Solace in a Song

When this drops, he’ll be touring Denmark. He travels the world with his music. He puts on a hell of a show. Go see him and say hi - http://dustbowlrevival.com/tour

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Did you miss this one?

If you’re new here and wondering, “what happened to this lady?” read The Fighter Still Remains Part 1. xo

I started writing this when I was on dialysis. It’s intended to be both memoir and a practical tool to help folks who might be going through something similar or those caregivers and family supporting someone with a challenging diagnosis. I hope to include excerpts here as I write. NOTE: This is not intended to replace actual medical guidance. Please consult your doctors on your individual challenges and situations. Also names have been changed for most of my medical staff.

Thank you to Roy Lenn and Richard Burwick for your founding level donation.

Rare Disease Girl is a reader-supported digital atlas for navigating life’s inevitable challenges: personal memoir, illness, parenthood, and health systems. Both free and paid subscriptions are available. If you would like to support my work, the best way is by becoming a paid subscriber. Thank you for being here.