Happy New Years

Wishing everyone a lovely trip around the sun.

Hi remarkable readers! Sending you all the love to start the year. I’m so grateful you’re here. Here’s a funny TikTok of baby July dancing to make you smile.

@taylorcoffmanmadeWhen your jam comes on- shake it baby! #baby #babiesoftiktok #babytok

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Dear paid subscribers, my family is so very grateful you’re here. As I begin to archive the many posts of 2023, you’ll maintain access. You’ve really helped support my family and my writing in an uncertain time.

If you want to join the paid subscribers, here is a new years discount offer for 2024:

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Reader Comment of the Week

Great work: both in the hospital to get better and now with your written recount! ♥️ Susan Fusco Fazio

If you’re new here and wondering, “what happened to this lady?” read The Fighter Still Remains Part 1. xo

I started writing this when I was on dialysis. It’s intended to be both memoir and a practical tool to help folks who might be going through something similar or those caregivers and family supporting someone with a challenging diagnosis. I hope to include excerpts here as I write. NOTE: This is not intended to replace actual medical guidance. Please consult your doctors on your individual challenges and situations. Also names have been changed for most of my medical staff.

Thank you Heidi Hilliker for joining as a paid subscriber. I miss you, birthday twin!

Thank you to Roy Lenn and Richard Burwick for your founding level donation.

Rare Disease Girl is a reader-supported digital atlas for navigating life’s inevitable challenges: personal memoir, illness, parenthood, and health systems. Both free and paid subscriptions are available. If you would like to support my work, the best way is by becoming a paid subscriber. Thank you for being here.