Taylor is back in the newsfeed with more tips for hospital stays & life as a patient
Buzzfeed featured Taylor's HUFFPOST article
Welcome readers.
First off, hi new subscribers. I’m so honored you’re here and grateful for all your stories. Thanks for connecting.
So, I wrote an article in the Huffington Post that went miraculously viral- in it I describe how I took action in the ICU to get my doctors to effectively communicate and organize my care. And yesterday it was back in many phones because Buzzfeed picked it up and reshared a version of it.
You can go back in my archives and read my in-depth journey- starting here - but essentially thanks for joining me here, especially those who have taken the added step and subscribed.
I often think, what would I have done if they hadn’t listened? What more could family members do to advocate?
For those new here, I wrote this article previously to answer those questions:
Tips on how to be heard in a hospital
Besides voicing concerns to doctors, you can voice concerns to nurses...
AMA- do you have questions for me? Feel free to drop them in the comments.
ARTICLES YOU MAY HAVE MISSED
How to create social media guidelines before emergencies occur
Hi Readers, Here’s a little something to think about before misfortune strikes. I urge you to talk with your loved ones about social media during medical emergencies sensitively over dinner. Love, T Things to Consider Before You Post- Creating Social Media Guidelines for When Catastrophe Strikes
What You Should Bring to a Hospital…
Hi Readers, Welcome! If you’re new here, check out some other posts from my book-in-progress. The book also includes practical tips like the ones below. If you’ve got other suggestions, add them to the comments! I’d love to hear what helped you. I started writing this book six months ago while on dialysis. It’s intended to be both memoir and a practical…
Should I tell my employer? The risks of medical disclosure.
Here I am in the above photo being radically open about my challenges. It’s both helped and hurt me.
Hey Dr. Google - How to Avoid Misinformation
After our doctor appointments, we all hop on Google. So let’s talk about it.
I started writing this when I was on dialysis. It’s intended to be both memoir and a practical tool to help folks who might be going through something similar or those caregivers and family supporting someone with a challenging diagnosis. NOTE: This is not intended to replace actual medical guidance. Please consult your doctors on your individual challenges and situations. Please talk to your clinicians before adjusting any of your care protocols. Also names have been changed for most of my medical staff.
Thank you to CC Couchois, Roy Lenn, and Dr. Richard Burwick for your founding level donation.
Congrats!