Archive - Rare Disease Girl

A note from the Wild West

12 hrs ago

Do you have these life-saving items at home?

Get these essentials in your medicine cabinet.

Jun 12

I want to give up

Jun 3

May 2025

Well, we are all going to die.

We also all deserve better than this.

May 31

Dark thoughts & Tsunami Warnings

Why are we so good at believing negative outcomes more than positive?

May 29 •

2:33

2 science-based questions I ask myself daily

And wow, do they instantly change my mood.

May 26

When things are not okay...

I've got help for you.

May 23

Advocating doesn’t take vacation

The intentional massive communication gap around Medicaid from a fjord.

May 22 •

1:37

I'm on a Fjord, but very distracted.

May 20

Getting woo-woo

May 18

Solutions for the tired and the hungry!

May 14

Don't open this unless you have called the mothers in your life.

Moms, come right in.

May 11

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