Rare Disease Girl

Rare Disease Girl

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Rare Disease Girl
Rare Disease Girl
Graduating from Dialysis Part 1
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Graduating from Dialysis Part 1

Becoming one of the small percentage of people who get off dialysis

Feb 18, 2024
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Rare Disease Girl
Rare Disease Girl
Graduating from Dialysis Part 1
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Hi dear friends,

Reminder that it’s Rare Disease Month. Please consider sharing my story and helping bring awareness to aHUS.

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My dialysis nurses would speak of people getting off treatment without a new kidney like it was mystical folklore. “I’ve seen it happen,” they’d say as if they were old sea captains talking about mermaid sightings.

Now I get to be …

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