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Richard Burwick's avatar

Taylor you are absolutely right, I agree with everything you are saying! While I do like the term aHUS, I am also part of the group that agreed to update the terminology. TMA is a useful umbrella term but the question remains, which of the TMA’s are aHUS and require complement blockade? For example, I’m interested in pregnancy TMA which includes HELLP syndrome, TTP, and aHUS. Both HELLP and aHUS may be considered complement mediated TMA, but how do we prove complement is the problem? Truthfully, we are still left in a conundrum, but I hope that ultimately the TMA terminology will bring our communities together, and bring more attention to aHUS and other rare TMA disorders. Thank you for all that you do for the aHUS/TMA community!

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