Taylor Does The Moth

How my illness helped me see my home in a new way

Hi Substack readers,

I had the amazing opportunity to tell a story at The Moth.

For folks who don’t know about The Moth - it’s a storytelling series. You go up, no script, and tell a story based on a theme in under five minutes. The theme on this night was Home.

It was an exhilarating experience and I’m thrilled to share it with you.

Comment of the Week

“Sadly, your beautiful description of “never being so close to the edge of existence” is too clear, and all so much more real. Gripping, painful, and heartbreaking. I am so thankful you made it through these harrowing days.” Betsy Lupetin

If you’re new here, start here where I begin sharing about my journey The Fighter Still Remains Part 1. xo

I started writing this when I was on dialysis. It’s intended to be both memoir and a practical tool to help folks who might be going through something similar or those caregivers and family supporting someone with a challenging diagnosis. I hope to include excerpts here as I write. NOTE: This is not intended to replace actual medical guidance. Please consult your doctors on your individual challenges and situations. Please talk to your clinicians before adjusting any of your care protocols.Also names have been changed for most of my medical staff.

Thank you to Roy Lenn and Richard Burwick for your founding level donation.