Rare Disease Girl

Rare Disease Girl

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Rare Disease Girl
Rare Disease Girl
Skiing with a Ghost

Skiing with a Ghost

A year after the hospital, I get to ski again.

Apr 07, 2024
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Rare Disease Girl
Rare Disease Girl
Skiing with a Ghost
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Hi Substack family,

I started skiing down the driveway as soon as I could walk. My dad met my mom on a chairlift. He was a ski patrol- and he literally picked her up when she fell on the slopes. Quite the snow Casanova.

But he was a challenging father. I’ve written about it in past posts. We did not have a good relationship. Or any relationship, in the …

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