Sitemap - 2023 - Rare Disease Girl

Sex and Dialysis

Merry merry merry

Happy Birthday to Me

A life-changing acting role

How do I get off dialysis?

Tis the Season- Open Enrollment

My First Mother's Day - Part 2

My First Mother's Day - Part 1

Quotes about the power of gratitude

July sees a Christmas tree for the first time

Introducing "Glimmer"

aHUS Q&A

The Magnificent Glory of Okay

Resurrection

The worst is behind me, unless there's an earthquake

Happy Magical Halloween

Friday Feels- Singing through pain and healing

When your mail is a werewolf...

The wonder and challenge of online patient groups

In the orbit of a miracle

A flood of intuition

Immense challenges in "Showing Up"

Am I an idiot for resisting the handicapped placard?

A year off dialysis

It's aHUS Awareness Day 2023

Lessons in showering without getting wet

Coming home Part 3

Meet Post Traumatic Growth

Coming home Part 2

Coming home Part 1

Evening with the Lupetins: Infusion Interview

Data on medical bias is pretty bad

I am leaving. I am leaving.

Be (for July)

Let it go

What we can do to avoid "the patient is an idiot” narrative.

Gotta love inspirational quotes...

Meet my Chest Catheter

A very angry boob

Battling Battles

What is Dialysis...?

The Bridge

Hospital Famous

"We're eliminating your position"

Taking Charge of Sh*t

Everything does *not* happen for a reason.

Dear Blood Donors

PSA: Don’t say “let me know if there’s anything I can do”

How to choose a movie when you might die before the end...?

I have a disease and regret not paying attention more in biology class

it is a serious thing // just to be alive - part 2

it is a serious thing // just to be alive - part 1

Welcome to my disease. What is atypical Hemolytic Uremic Syndrome (aHUS) or Complement-Mediated Thrombotic Microangiopathy (CM-TMA)?

How to create social media guidelines before emergencies occur

Bug Out!

When you're chronically ill, can gratefulness ever be a detriment?

Ten Tips for Entertaining Yourself in a Hospital...

... and Seeing Cats

The Surprising Thing You Can Do to Feel Better in a Hospital

Why Sharing Matters...

I See You - Part 2

I See You - Part 1

What **NOT** to Bring to a Hospital

My Notes from Being Intubated

The Fighter Still Remains - Part 3

The Fighter Still Remains - Part 2

Dinner with the Lupetins- Taylor interviews Zach

The Fighter Still Remains - Part 1

What You Should Bring to a Hospital…

Things Happen in Threes: The Psychological Thriller - Part 3

Things Happen in Threes: The Psychological Thriller - Part 2

Things Happen in Threes: The Psychological Thriller Part 1

Coming soon