Rare Disease Girl

Rare Disease Girl

Share this post

Rare Disease Girl
Rare Disease Girl
Taking Charge of Sh*t
Copy link
Facebook
Email
Notes
More

Taking Charge of Sh*t

Finding your power again, even when you're barely alive in an ICU.

Taylor Coffman's avatar
Taylor Coffman
Jul 03, 2023
∙ Paid
1

Share this post

Rare Disease Girl
Rare Disease Girl
Taking Charge of Sh*t
Copy link
Facebook
Email
Notes
More
1
Share

Hi Readers,

This picture was taken a day after I woke up in the ICU. Those Dorothy braids were crafted by the nurse with the hat I wrote about. This was a good day. I finally slept… because comas, even medically induced ones, don’t feel like sleep. I was fortunate enough to get to see the baby twice. I’m sure they knew her presence was good for me. I wa…

Keep reading with a 7-day free trial

Subscribe to Rare Disease Girl to keep reading this post and get 7 days of free access to the full post archives.

Already a paid subscriber? Sign in
© 2025 Taylor Coffman
Privacy ∙ Terms ∙ Collection notice
Start writingGet the app
Substack is the home for great culture

Share

Copy link
Facebook
Email
Notes
More