A year off dialysis
A year ago, my port was removed
@taylorcoffmanmade1 year ago I got off dialysis after 9mos, 5 weeks in the hospital, 3 times on a ventilator, and 1 beautiful baby. So much to celebrate! For more on my story check out this vid and the Substack Rare Disease Girl xo @Taylor Coffman #ahus #atypicalhus #dialysis #kidneyfailure #kidneydisease #raredisease #chronicillness
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What a year it’s been. A win of a lifetime.
I made a TikTok with some footage from the journey.
Hopefully my survival and willingness to share can help others. Thanks for taking the strange odyssey with me.
If you’re new here and wondering, “what happened to this lady?” read The Fighter Still Remains Part 1. xo
Thank you to Roy Lenn and Richard Burwick for your founding level donation.
Congratulations and Bravo for your courage, resilience, perseverance in getting through it all , and for sharing your intimate, painful and, personal story. Bravo for your remarkable strength of purpose to share; to help others, while also coming to terms with living with this disease as you reclaim your motherhood and family life and do the work to heal emotionally. 👏❤️
Bravo, Taylor. You're a true force of nature, a beautiful human being and an amazing role model for us all.