Hi readers- a little something for all of us to keep in mind.
If you’re new here, I started writing this six months ago when I was on dialysis. It’s intended to be both memoir and a practical tool to help folks who might be going through something similar or those caregivers and family supporting someone with a challenging diagnosis. I hope to include excerpts here as I write. NOTE: This is not intended to replace actual medical guidance. Please consult your doctors on your individual challenges and situations. Also names have been changed for most of my medical staff.
Dear family and friends of a person who is ill,
You might wonder “what can I do to help?”
Don’t just say “let me know if there’s anything I can do” because the answer is yes.
Do they need a Go Fund Me or financial help? Set that up.
Do they need anything at the hospital (see previous post )
Feed the family at home. Send bagels. Send food delivery gift cards if their fridge is full.
Do they have kids? Help out with childcare while the partner visits at the hospital.
Do they need help making phone calls to insurance, etc? Those calls can be overwhelming- see if you can help. Or sit with them as they try to navigate confusing things like EDD.
Visiting the patient? Offer to help them with moisturizing, a foot massage, hair or nail care. If it’s at night, help them fall asleep and then leave.
Help sort unopened mail. Discard anything that’s junk.
Water their plants.
Give them updates on their pets. Maybe give their pet some extra TLC. The pets get stressed and don’t understand what is happening. All they know is something is wrong.
Laundry.
Drive them to appointments.
Cleaning… or pay for a cleaning service.
Roy, thank you so much for your founding level donation. You’re truly the best of the best and I’m profoundly honored to have your support.
Thank you to Richard Burwick as well your founding level donation.