aHUS Q&A

Taylor answering questions from a medical student

Hi Readers, A medical student reached out to me with questions about atypical HUS, so I made the video response below.

I wrote an extensive but super accessible post about my disease here in case you missed it.

@taylorcoffmanmadeI was asked to do a Q & A about my disease. Sorry it’s long! For anyone interested in learning more about #CMTMA or #AHUS more about my story here: @taylorcoffmanmade @taylorcoffmanmade #medicaltiktok #medical #medicalstudent #tma #complementsystem #complement #raredisease #chronicdisease #atypicalhemolyticuremicsyndrome

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Reader Comment of the Week

“Another powerful post!” - Susan Fusco-Fazio

Do you or someone you know have aHUS? Say hello in the comments. I’d love to meet you! xo

If you’re new here and wondering, “what happened to this lady?” read The Fighter Still Remains Part 1. xo

I started writing this when I was on dialysis. It’s intended to be both memoir and a practical tool to help folks who might be going through something similar or those caregivers and family supporting someone with a challenging diagnosis. I hope to include excerpts here as I write. NOTE: This is not intended to replace actual medical guidance. Please consult your doctors on your individual challenges and situations. Also names have been changed for most of my medical staff.

Thank you to Roy Lenn and Richard Burwick for your founding level donation.

Rare Disease Girl is a reader-supported digital atlas for navigating life’s inevitable challenges: personal memoir, illness, parenthood, and health systems. Both free and paid subscriptions are available. If you would like to support my work, the best way is by becoming a paid subscriber. Thank you for being here.