Rare Disease Girl

Rare Disease Girl

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Rare Disease Girl
Rare Disease Girl
Coming home Part 1

Coming home Part 1

When the fantasy in your mind doesn't quite match reality.

Taylor Coffman's avatar
Taylor Coffman
Sep 01, 2023
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Rare Disease Girl
Rare Disease Girl
Coming home Part 1
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Hi Readers,

I wish I could tell you coming home was happy ever after. It certainly was a huge step forward… but it was hard. Especially my first 24 hours home.

This photo was taken of July when I was in the hospital. I would stare at it and dream of home with her. But the fantasy and the reality didn’t match because I was so very, very different.

Everythi…

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