Rare Disease Girl

Rare Disease Girl

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Rare Disease Girl
Rare Disease Girl
What we can do to avoid "the patient is an idiot” narrative.
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What we can do to avoid "the patient is an idiot” narrative.

Improving the patient/doctor power dynamic aka I can be stressed and hysterical and also be correct about something terribly wrong happening inside my body.

Taylor Coffman's avatar
Taylor Coffman
Aug 11, 2023
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Rare Disease Girl
Rare Disease Girl
What we can do to avoid "the patient is an idiot” narrative.
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For those new here, I started writing this when I was on dialysis. It’s intended to be both memoir and a practical tool to help folks who might be going through something similar or those caregivers and family supporting someone with a challenging diagnosis. I hope to include excerpts here as I write. NOTE: This is not intended to replace actual medical…

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