Sitemap - 2025 - Rare Disease Girl
Do you have these life-saving items at home?
Well, we are all going to die.
Dark thoughts & Tsunami Warnings
2 science-based questions I ask myself daily
Advocating doesn’t take vacation
Don't open this unless you have called the mothers in your life.
One secret health insurance doesn’t want you to know
Disappointment, Money, & Unanswered Emails.
I'm not crying. You're crying.
...thinking too much about Noah Wylie
One Secret Insurance Companies Don't Want You To Know
The Science of Kindness (Spoiler, It's A Superpower)
How to be productive when you just feel like lying down?
I Don’t Know What My Disease’s Name is Anymore
We are not supposed to love our bodies forever
Happy Anniversary - a love letter to you
Do You Have Problem-Solving Fatigue?
How is my disease related to a King Cobra?