Happy Spring lovely readers,
Above is a photo captured of my family home’s garden during a rained out garden party to celebrate our wedding in 2017. The unpredictable Spring weather thwarted my sunny visions, but in every life showers must fall.
I moved there in high school - and a year later after this photo or so, it was packed up. Now I hope it brings another family as much joy as it brought us. It will always remain in my heart as a place I wish I could return to. Now it only exists for us in pictures and in memory for the people who spent time there.
I’ll miss that garden always in particular with lush greens, magnolia tree, and busy fish pond - home to the happiest frogs I’ve ever known - especially in the this time of year.
We packed up the house in April 2018 just as the daffodils and tulips were blooming. I spent a few days there alone sorting through my stuff. No food or coffee or dishware in the house. Just boxes, old photos, my youth and its leftover trinkets, trash, and the bright blooming garden. A last goodbye to a cherished place.
Spring brings change to all creatures, I suppose. Ready or not.
So, I find it best to be intentional if I can.
As a creature of nature, I feel my body follows a certain energy rhythm.
In the winter, I burrow. I like my cozy cave and creature comforts. Candles and blankets with tea and a yearning for game nights and home cooking and cheese.
But as the light returns and the days grow longer, so does my energy. I’m able to embrace change and evolution more gently.
I want to emerge from my cave, dine al fresco, ride a bike and wake early to tackle my ambitions.
I yearn to get stronger and work out. And I feel the pull to grow and bloom much like the world around me.
Spring demands our attention. It draws us into the world… and asks us to grow towards the light.
Spring resolutions feel right to me in a way that resolutions in the dead of winter do not… so here are mine:
My Spring Resolutions
Wake up early Monday, Wednesday, and Friday to be more productive.
Cook more at lunch.
Begin my next book… (it’s rattling around in my head).
Edit my screenplays. (One may go into production by the end of the year, fingers crossed)!
Tackle my PT exercises every weekday with gratitude. I GET to exercise and that’s amazing.
Support my subconscious to be kinder and more aligned with my purpose. I’m reading Mind Magic about neuroscience and the power of the subconscious. Lots of reframing for me about how the brain works. It’s fascinating.
Get outside more. Work from the patio. Walk with friends (who’s up for a stroll?). Hike more.
Nap unapologetically.
Spring clean and put items on the Buy Nothing Group to make space.
Put down my phone more. Especially after school hours when July gets home.
Create smart goals around advocacy. How can I help make the world a better place for patients and caregivers?
Remember to wear my bite-guard at night.
Explore more ways to help people love their lives, make peace with their humanity, and feel fulfilled.
Want to join me in some spring resolutions? Are there some goals or changes you’re hoping to make?
DID YOU MISS IT?
My Survivor List
Hi friends, I’m thrilled to see Rare Disease Girl is read across 11 countries. A special hello to my subscribers in Belgium, Australia, and India. Thank you for reading. Say hi in the comments sometime!
If you’re new here and wondering, “what happened to this lady?” read:
Welcome to my disease. What is atypical Hemolytic Uremic Syndrome (aHUS) or Complement-Mediated Thrombotic Microangiopathy (CM-TMA)?
Hi, If you’re new here, I started writing a book six months ago when I was on dialysis. It’s intended to be both memoir and a practical tool to help folks who might be going through something similar or those caregivers and family supporting someone with a challenging diagnosis. I hope to include excerpts here as I write. NOTE: This is not intended to r…
I started writing this when I was on dialysis. It’s intended to be both memoir and a practical tool to help folks who might be going through something similar or those caregivers and family supporting someone with a challenging diagnosis. NOTE: This is not intended to replace actual medical guidance. Please consult your doctors on your individual challenges and situations. Please talk to your clinicians before adjusting any of your care protocols. Also names have been changed for most of my medical staff.
Thank you to CC Couchois, Roy Lenn, and Dr. Richard Burwick for your founding level donation.
great ideas !
This is wonderful!! Your last one is so so needed. God bless you in your endeavors, Taylor.