Rare Disease Girl

Rare Disease Girl

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Boo! cute photos, a miracle, and a spooky story
Happy Halloween!
Oct 31
1
4
Your stories matter to me.
aHUS Conference Reflections and Healthcare Survey
Oct 26
2
2
You’re not brave, if you’re not scared.
I walk backwards off a 14 story building for cancer.
Oct 8
5
4
Most Popular
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When your worst photo is all over the internet
Nov 17, 2024 • Taylor Coffman
8
5
Welcome to my disease. What is atypical Hemolytic Uremic Syndrome (aHUS) or Complement-Mediated Thrombotic Microangiopathy (C-TMA)?
May 26, 2023 • Taylor Coffman
7
3
I want to give up
Jun 3
4
5
A wave of miracles
Mar 10, 2024
4
2
Taylor Health Update - A New Little Mystery
Apr 4, 2024 • Taylor Coffman
4
4
In the orbit of a miracle
Oct 17, 2023 • Taylor Coffman
4
3
Live Like It Matters
Two toddler-moms with illness discuss life and what's important
Sep 28
1
The aHUS Patient Resource Guide
Made By Patients For Patients
Sep 21
How I Save Money On Medical Bills
Life is more expensive for everyone, and getting worse - here's what I do.
Sep 18
1
September Reset
Back to school, back to goals
Sep 7
this is your sign to make all your doctor appointments for the rest of the year
and a basic explainer of the wild CDC shake-up.
Aug 29
Your Health Insurance 101 Resource Guide
Terminology we should have been taught in high school.
Aug 20
2
Familiar face on WebMD
My first video dropped on their socials.
Aug 17
5
3 Naked Moments
Things I learned without my clothes on.
Aug 15
1
2
Stages of Denial
Save for later: How-to Guide for the Insurance Denial Process
Aug 6
3
2
Rare Disease Girl
Rare Disease Girl
I want to help you save your own life. RDG is a digital atlas for navigating our inevitable challenges: personal memoir, health systems, mental wellness, patient-empowerment, life-saving tips, and motherhood.

Rare Disease Girl

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