Rare Disease Girl

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Things Happen in Threes: The Psychological Thriller Part 1
 • Taylor Coffman
2
Welcome to my disease. What is atypical Hemolytic Uremic Syndrome (aHUS) or Complement-Mediated Thrombotic Microangiopathy (CM-TMA)?
 • Taylor Coffman
3
How to choose a movie when you might die before the end...?
 • Taylor Coffman
5
A wave of miracles
2
Things Happen in Threes: The Psychological Thriller - Part 3
 • Taylor Coffman
2
Taylor Health Update - A New Little Mystery
 • Taylor Coffman
4
And Healing Begins Again - My Hospital Journey Continues
Plus an evolution on whether I think "everything happens for a reason"
13
The Emergency Surgery - Lessons in the Unexpected - Part 3
Scenes from This Week's Post-Op
20
It's an Emergency! Lessons in the Unexpected - Part 2
Update - Taylor goes back to the hospital
4
Lessons in the Unexpected
My year as a hospital volunteer
2
When your worst photo is all over the internet
Learning to love a bad picture of myself.
 • 
Taylor Coffman
3
My LEAST favorite feeling
THE SCIENCE OF DREAD
4
Taylor is back in the newsfeed with more tips for hospital stays & life as a patient
Buzzfeed featured Taylor's HUFFPOST article
 • 
Taylor Coffman
1
Weird week ahead. Relax your jaw.
A reminder of a lovely tool to feel more comfort in the world.
2
Was I my own ghost?
A Spooky Halloween Story
1
Rare Disease Girl
Rare Disease Girl
A digital atlas for navigating life’s inevitable challenges: personal memoir, illness, parenthood, and health systems.

Rare Disease Girl

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