Hi Author here! I feel like it's worth adding that some countries don't let the drug to treat aHUS in because of its cost (it's an orphan drug so they get approval by the government to make it VERY VERY VERY expensive). So sadly if you're reading this in, say, India, which has one of the worlds largest populations, you can't get access to the treatment. Reach out to the aHUS Alliance and Foundation for more information on advocacy.
That’s so so frustrating! I’m hopeful soon new drugs will be on the market so everyone can have more options. Yes contact the Alliance. I know folks are working to help patients around the world.
Hi Author here! I feel like it's worth adding that some countries don't let the drug to treat aHUS in because of its cost (it's an orphan drug so they get approval by the government to make it VERY VERY VERY expensive). So sadly if you're reading this in, say, India, which has one of the worlds largest populations, you can't get access to the treatment. Reach out to the aHUS Alliance and Foundation for more information on advocacy.
Should I contact for Sweden? In Malmoe its not aloud ☹️. In some states it is. I cant move for that...
That’s so so frustrating! I’m hopeful soon new drugs will be on the market so everyone can have more options. Yes contact the Alliance. I know folks are working to help patients around the world.