How to Help Save Your Own Life
I empower you to get empowered as a patient.
Hey Substackers,
I was reflecting on the moment in the photo above. What a scary time. I learned so much from all my terrifying experiences.
One thing I know, we can face our biggest nightmares and step into our power at the same time.
I was truly lucky to have the medical team I did, but even with the best of the best, challenges arise.
Here is what I have written about finding our voice amidst the chaos and how to be your own advocate when everything starts to crumble. There are so many ways we can support our medical team as well as push for the best quality of care in a system full of challenges.
First, here’s my Huffington Post piece if you haven’t already read it.
Hey Dr. Google - How to Avoid Misinformation
Taking Charge of Sh*t
What we can do to avoid "the patient is an idiot” narrative.
Did you miss it?
If you’re curious to read more about the time my brain was poisoned by my own toxins, I wrote about the incredible nightmare starting here:
If you’re new here and wondering, “what happened to this lady?” read:
I started writing this when I was on dialysis. It’s intended to be both memoir and a practical tool to help folks who might be going through something similar or those caregivers and family supporting someone with a challenging diagnosis. NOTE: This is not intended to replace actual medical guidance. Please consult your doctors on your individual challenges and situations. Please talk to your clinicians before adjusting any of your care protocols. Also names have been changed for most of my medical staff.
Thank you to CC Couchois, Roy Lenn, and Dr. Richard Burwick for your founding level donation.