I also have aHUS (haven't heard about calling it CM-TMA, but it makes sense) and have been following you for a bit! I was diagnosed in May of 2022, and actually just recently received news that they found a kidney match for me (I'm O blood type, which is harder to match I guess, and also am a blood transfusion recipient, making a match even harder). Thank you for your content, I've been trying to find a community out there about all this - it's tough.
Hi Stephanie. I'm so sorry you have this disease, but I'm glad you have a kidney match! I know it's hard when you get this kind of diagnosis. I do recommend the facebook groups when you are ready. You are not alone. Thank you for saying hi and I'm glad you're here! It means a lot to me.
I also have aHUS (haven't heard about calling it CM-TMA, but it makes sense) and have been following you for a bit! I was diagnosed in May of 2022, and actually just recently received news that they found a kidney match for me (I'm O blood type, which is harder to match I guess, and also am a blood transfusion recipient, making a match even harder). Thank you for your content, I've been trying to find a community out there about all this - it's tough.
Hi Stephanie. I'm so sorry you have this disease, but I'm glad you have a kidney match! I know it's hard when you get this kind of diagnosis. I do recommend the facebook groups when you are ready. You are not alone. Thank you for saying hi and I'm glad you're here! It means a lot to me.
Thanks for the helpful breakdown!
Thanks for the comment! I love hearing from folks.
very helpful!
If anyone has follow-up questions, let me know!
Thank you!