I am so proud of you all the work you you’re doing and I don’t mean to sound patronizing.
I believe that my daughter might have been a lot like you if she had gotten to grow up with her disease she already had started doing outreach and had written and published about her disease when she was only 14 years old. it’s great that you are helping other people but remember that it’s also OK to just be you and to have the life that you want with your family so balance it all out and keep on being Taylor the Taylor I’ve come to know Love through Substack I love the picture of the three of you and Disney and I love the way you wrote this piece and how you made analogies to various things-that was really cool.
Not patronizing at all. Thank you, Susan. I'm sure your daughter and I would have been friends. You can be proud of me anytime! Wishing you a beautiful Mother's Day. You inspire me too!
Especially in rare disease circles, it can be quite tricky to find each other outside Facebook. Grateful the aHUS Foundation has created this opportunity to come together.
I am so proud of you all the work you you’re doing and I don’t mean to sound patronizing.
I believe that my daughter might have been a lot like you if she had gotten to grow up with her disease she already had started doing outreach and had written and published about her disease when she was only 14 years old. it’s great that you are helping other people but remember that it’s also OK to just be you and to have the life that you want with your family so balance it all out and keep on being Taylor the Taylor I’ve come to know Love through Substack I love the picture of the three of you and Disney and I love the way you wrote this piece and how you made analogies to various things-that was really cool.
Not patronizing at all. Thank you, Susan. I'm sure your daughter and I would have been friends. You can be proud of me anytime! Wishing you a beautiful Mother's Day. You inspire me too!
Excited to see what magic has in store for you next!
Yes! Sign me up for some dreams-come-true!
I am so happy that you are FINDING YOUR PEOPLE!
Especially in rare disease circles, it can be quite tricky to find each other outside Facebook. Grateful the aHUS Foundation has created this opportunity to come together.