Managing your own healthcare while also being a patient is hard, they’re both full time jobs, and take our full attention. I’m proud of you for advocating so hard for yourself and am so glad you found a team to fight for / with you. Thank you for sharing your journey with us.
I know you know! If you ever have any suggestions or things that have worked for you- I’d love to hear. I know being patient and caregiver simultaneously is a bonus-level challenge!
These are life-saving insights and important for others to hear, Taylor.
It's insane that repeated administrative barriers exist for something that's clearly been medically prescribed and crucial to your health. I'm so sorry you must grit and work this hard to access your essential meds.
At the same time, you've figured out how to navigate it all to get the approvals—impressive!
It always helps to know most get overturned- it’s like a secret weapon. So when I take my chutzpah and add confidence with the support of my physician and my “make it happen” energy, I can move stalls in days. Fighting for our lives looks like project management. Thanks for your support!!
Managing your own healthcare while also being a patient is hard, they’re both full time jobs, and take our full attention. I’m proud of you for advocating so hard for yourself and am so glad you found a team to fight for / with you. Thank you for sharing your journey with us.
I know you know! If you ever have any suggestions or things that have worked for you- I’d love to hear. I know being patient and caregiver simultaneously is a bonus-level challenge!
These are life-saving insights and important for others to hear, Taylor.
It's insane that repeated administrative barriers exist for something that's clearly been medically prescribed and crucial to your health. I'm so sorry you must grit and work this hard to access your essential meds.
At the same time, you've figured out how to navigate it all to get the approvals—impressive!
It always helps to know most get overturned- it’s like a secret weapon. So when I take my chutzpah and add confidence with the support of my physician and my “make it happen” energy, I can move stalls in days. Fighting for our lives looks like project management. Thanks for your support!!