6 Comments

Thank you for sharing your story! I just read it on HuffPost so sought you out here. I, too, recently went through a sudden, debilitating and unusual health situation (though not as serious or rare). I was seeing numerous doctors and occasionally dealing with the medical gaslighting that is, unfortunately, common for women. Until you’re in that situation, it’s difficult to understand just how overwhelming it can be to navigate our medical system when you’re already so physically, mentally and emotionally depleted. I’m sure there are many who will feel inspired and validated by reading your experiences here!

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Thank you Heather. I appreciate you reaching out and I hope you're stable!

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Thank you. I am currently trying to navigate several doctors and MANY tests to determine what is going on with me. I don’t understand a lot of the tests and I’m trying to get them to communicate with each other but not sure that is working I’m being frustrated.

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Oh yes- I know how that is. It's not easy. If they're not communicating effectively, maybe respectfully let them know your frustrations and ask for help in coordinating the care more cohesively.

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Taylor, you are totally amazing. Talk about turning lemons into lemonade (well, not the best analogy) — you are helping others realize they are not alone and inspiring all of us. Many blessings!!

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Thank you. I'll take all the lemonades I can get. Grateful for you, Ellen.

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