yes, I know what you’re talking about. I have arthritis -invisible. I also have a fragrance allergy and asthma-also invisible. I have run into trouble in the workplace, and with friends and family. people still walk too fast even though I tell them. I remind everybody not to wear fragrance before a holiday and sometimes for an individual get together. sometimes they wear a fragrance product anyway because I don’t think it will bother me and then I have to put on a mask. I have to be my own advocate, which can be exhausting but necessary.
It also takes courage to write these articles. July is also brief parents month and I recently wrote an article about this- which took a lot of courage to bear my soul. Some people might be offended, but I’m just trying to educate others, foster greater sensitivity and tell my raw truth. Thank you very much for your courage. Keep writing!
Thank you Susan! I need to catch up on your Substack. I met a woman yesterday at the hospital who lost three children in three separate incidents and I was leveled speechless. Your raw truth helps us all navigate the human story.
yes, please read the most recent one about break parents that I wrote on my daughter’s birthday. I do mention people who lose more than one child and all their children and the organization is called a live alone that helps people like them like the person you met and me who had an only child anyway yes it is. It is horrible. I’m so sorry if you remember her name or if you got her name, you could share my my article, I’d be glad to help her
Hi Taylor - big hugs! I thought, after reading a few posts you deserve and need some. Secondly, RESPECT, and July is SO cute!
Thank you! I think it’s important to share our learnings but also our vulnerabilities. 🫶
Again, I meant bereaved parents
Even the computer doesn't know what to say...
I meant to write bereaved parents month -voice typing is not working
yes, I know what you’re talking about. I have arthritis -invisible. I also have a fragrance allergy and asthma-also invisible. I have run into trouble in the workplace, and with friends and family. people still walk too fast even though I tell them. I remind everybody not to wear fragrance before a holiday and sometimes for an individual get together. sometimes they wear a fragrance product anyway because I don’t think it will bother me and then I have to put on a mask. I have to be my own advocate, which can be exhausting but necessary.
It also takes courage to write these articles. July is also brief parents month and I recently wrote an article about this- which took a lot of courage to bear my soul. Some people might be offended, but I’m just trying to educate others, foster greater sensitivity and tell my raw truth. Thank you very much for your courage. Keep writing!
Thank you Susan! I need to catch up on your Substack. I met a woman yesterday at the hospital who lost three children in three separate incidents and I was leveled speechless. Your raw truth helps us all navigate the human story.
yes, please read the most recent one about break parents that I wrote on my daughter’s birthday. I do mention people who lose more than one child and all their children and the organization is called a live alone that helps people like them like the person you met and me who had an only child anyway yes it is. It is horrible. I’m so sorry if you remember her name or if you got her name, you could share my my article, I’d be glad to help her
I will. Thank you!