Thank you for shining a light on rare disease day. I was born with Idiopathic Hypertrophic Subaortic Stenosis, later renamed Hypertrophic Cardiomyopathy. It had no cure or treatment at the time, and I ended up with a heart transplant. I wrote a little bit about it this past Wednesday.
Thanks Dawn! I’ll check out your substack. I had a lot of heart conditions as part of aHUS- I hope you’re feeling stable. I know first hand how scary a heart condition is!
Thank you for spending some of your precious energy and time to publish this, Taylor. I'm learning and will keep reading—best wishes to you and your lovely family, living Rare.
I'm on me-time, so right now, I'm doing very well, thx! xoxo You're very welcome, Taylor. Together, we can lift awareness AND build mutual support. Walking my empathy and inspiration path.xoxo
Thank you for shining a light on rare disease day. I was born with Idiopathic Hypertrophic Subaortic Stenosis, later renamed Hypertrophic Cardiomyopathy. It had no cure or treatment at the time, and I ended up with a heart transplant. I wrote a little bit about it this past Wednesday.
https://dawnlevitt.substack.com/p/today-is-hypertrophic-cardiomyopathy-058
Thanks Dawn! I’ll check out your substack. I had a lot of heart conditions as part of aHUS- I hope you’re feeling stable. I know first hand how scary a heart condition is!
Thank you for spending some of your precious energy and time to publish this, Taylor. I'm learning and will keep reading—best wishes to you and your lovely family, living Rare.
Thanks for holding space and being such an enormous champion. Hope you’re doing well!
I'm on me-time, so right now, I'm doing very well, thx! xoxo You're very welcome, Taylor. Together, we can lift awareness AND build mutual support. Walking my empathy and inspiration path.xoxo
Perfectly put! Thanks!