A year ago, on Valentine’s Day, I shared a story about the Valentine’s Day I spent in the hospital - and thus Rare Disease Girl was born.
Now a year later, after 90 posts I’ve reached so many folks with my story- turning pain into community, connection, and inspiration. It’s read regularly across the US and in twelve countries.
And it’s all supported by YOU, dear reader.
Extra special thanks to founding donors Dr. Richard Burwick and Roy Lenn. I’m so inspired by your encouragement.
So as a thank you, here is a gift for your ears. A version of that original love story, recorded in one take and put to music and sound by yours truly.
It’s about 15 mins long… and full of heart.
Thank you for coming on this journey.
Happy Rare Disease month.
Taylor xo
DON’T MISS TAYLOR ON THIS PODCAST
If you’re new here and wondering, “what happened to this lady?” read The Fighter Still Remains Part 1. xo
I started writing this when I was on dialysis. It’s intended to be both memoir and a practical tool to help folks who might be going through something similar or those caregivers and family supporting someone with a challenging diagnosis. I hope to include excerpts here as I write. NOTE: This is not intended to replace actual medical guidance. Please consult your doctors on your individual challenges and situations. Please talk to your clinicians before adjusting any of your care protocols.Also names have been changed for most of my medical staff.
Extra thanks to new paid subscribers! Jmorri613 and SKlopfliesh - so grateful you’re here and supporting this mission. Immensely grateful!
Thank you to Roy Lenn and Richard Burwick for your founding level donation.
Happy Anniversary Rare Disease Girl - A Valentine's Day Audio Story